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Dec 8, 2011

One phone call

This week I went to my doctor (well, actually, she's a Nurse Practitioner in my OB's office) to discuss the results of some lab work she had ordered the week before.  I just haven't been myself since Kate was born, and three and a half months out, I expect to feel more normal.  The extreme fatigue, dizziness, headaches, insomnia, vision and memory problems, and irritability, coupled with my nursing struggles, prompted my initial visit. Lab work validated how lousy I have been feeling.  My thyroid numbers were way low. Liver enzymes were high.  Progesterone and estrogen levels were post-menopausal. Although blood counts didn't point to anemia, the  other markers definitely showed reason for my lethargy and malaise.  Melinda (the NP) wasn't surprised that I felt lousy! She was also quite concerned about what the labs meant.  Two things seemed like possible culprits: early-onset menopause or a tumor on my pituitary gland.

Gulp.  You know things are bad when menopause at 32 sounds terrific.

My meeting with Melinda was on Tuesday.  She was content to wait for the results of additional labs, but I was not.  Once the word "tumor" popped out of her mouth, I needed to know if she was right or wrong.  I needed to know if I had a foreign body growing in my skull, threatening to take over my hormones, my sight, my personality.  I pressed, and on Wednesday morning I found myself in an MRI machine, getting a map of my brain.  That experience is on my short list of freaky medical things I never want to experience again. Aside from having my head caged and my body shoved in a tiny tunnel, the noise was deafening and frightening.  And that only covers the physical discomforts!  I couldn't believe what I was doing--that those 40 minutes could define the rest of my life.  I would be quite content to never have another MRI in my life.  It was not pleasant.

And then the waiting game began.  Garry and I discovered we have very active imaginations.  During waking and sleeping hours, we imagined every scenario--from best case to worse case--associated with impending brain surgery.  Two of my friends have had pituitary tumors, and knowing about their experiences added details to our dreams that were scary and surreal.  We certainly haven't slept enough in the last couple of days as we have pondered my mortality, five little kids who need their mama, our stressed-out bank account, and the Christmas holiday around the corner.  But through it all I had complete peace.  I knew that whatever happened, we'd make it through.

This afternoon I was unloading kids from the car after school and talking to a friend who was dropping something off when my cell phone rang.  Immediately my heart started racing.  It was Melinda.  I knew she was calling with the MRI results.  So with kids swarming and a friend standing by, I stood in the garage and heard her say, "The MRI looks great.  You do not have a tumor."

Sweeter words were never spoken!  I went weak in the knees and had to sit down.  I had convinced myself that I had a tumor, and that I would be spending Christmas in a Denver ICU.  Poor Garry sounded shocked when I called with good news.  Of course he was relieved, but like me, he had expected the worst.  My mom cried when I called her.  Our prayers were answered!

Of course my symptoms persist, tumor or not.  The quest to feel better has just begun.  I am going to try some hormone and thyroid supplementation to see if that helps remind my body how to function properly.  The way is uncertain, and I already feel like I need a nap.  But I also feel like I have a new lease on life.  

It's not a tumor!  Hooray!!!!!

14 comments:

Amanda said...

I am SO glad it's not a tumor! What a scary set of events to experience. I so hope they're able to bring you back in balance with the various therapies. And, I'm really sorry that your health continues to be a challenge! That alone is completely draining.

Emma said...

What a blessing! I hope they figure something out soon, so you can feel back to normal. It's amazing how one phone call can change your life, for good or bad.

Jenny said...

Oh my gosh, Heidi, I'm so glad you're okay! How terrifying! I bet you're holding everybody tighter.

Adri said...

So scary! And, amazing what a little perspective can do!

joeyship said...

Oh sweetie. I can't imagine how the last couple of days have been for you. I'm so thrilled it wasn't a tumor. I'm sure they'll be able to set you right lickety split. I love you, dear Heido. Try to be kind to yourself in the coming weeks while you're figuring all of this out.

Mitchellaneous said...

Yikes.

I'm Michele, a friend of Eric's from work and a fan of Angie's. I SO hope that you get to feeling better...but you may want to try cutting some irritants out of your diet. I felt like garbage for 3 years until a thyroid/autoimmune specialist talked me into cutting gluten, eggs, dairy, and soy from my diet for a month. After the 2nd week, I felt like a whole new person. Turns out that gluten and eggs irritate my immune system so it attacks healthy tissue, so I ALWAYS felt terrible.

Your symptoms seem more severe than mine were, but it might be worth a shot--cheaper, less invasive, and zero side effects.

My prayers are with you!!!

Jill said...

Oh, Heidi! I'm sorry you had to go through that. I know how quickly our minds can go to the dark places when we don't know exactly what is going on. I am so glad that you are tumor free and hope that you can find some answers to the issues you are facing quickly. Sending prayers your way!

Grandma said...

We are thrilled and so relieved you are tumor free. What a scary thing to go through. Our fasting and prayers have been answered. Now just to getting the rest figured out. I hope you feel better soon.

granny said...

So grateful, and expect great things in the next weeks. You have lots of support here. Wish I was closer.

Colleen said...

Oh my goodness! What a stressful week it has been for you! I have walked a mile in those shoes, except it was for Zac when his tics first started the summer before kindergarten. MRI, waiting, certain of the worst-case-scenarios and all. I got a little teary reading this! I am glad you are through it and tumor free! Whatever is off for you is obviously more extreme, but my thyroid went crazy after Luke weaned too, but somehow got reset between the initial test and the second test so I never had to end up on medication, but it sure made me feel exhausted and grouchy while it was off. Here is to health and healing and no tumors! HOORAY!

maynardmoments said...

So scary! I am very glad that the phone call was a happy one. Few! I hope you can figure out what your body is doing, and get all set again. I understand the stress a weirded out body can bring.

betsy said...

Hooray is right! We love you! And you will be in our prayers!

Danielle said...

such a scary experience! hope you start feeling better!!!

Melanie said...

If ever there was a girl that God would be mindful of, it's you, my dear. I'm so thankful that prayers have been answered!

pass it on!

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